Betsy Pilon is the executive director of the nonprofit organization HOPE FOR HIE. Hope for HIE provides awareness, education and support to families and providers dealing with neonatal and pediatric hypoxic ischemic encephalopathy.  Learn more at www.hopeforhie.org or on twitter @HopeforHIE

Check out the other half of this discussion on just say HIE (hope for HIE's podcast) where we delve into the challenges and opportunities that clinicians face during the care of  patients stricken by HIE.

Check out our appearance on Just Say HIE, the official podcast of Hope for HIE: